BDFA Dragon Boat Race

Posted by | October 24, 2013 | Community

We recently took part in a Dragon Boat race in support of the BDFA (Batten Disease Family Association). Unfortunately we were only able to complete two races before the event was called off due to rain.

The Batten Disease Family Association (BDFA) is the only UK Charity dedicated to supporting families, raising awareness and facilitating research into the group of diseases known as the NCLs or Batten Disease. The charity aims to facilitate research into Batten Disease to further knowledge about the disease, potential therapies and ultimately a cure.

Find out more